Duangjay said her mother told her that she was born with big hands and the hands kept growing as she get older, she said that she was angry with life and she hated her self so she decided to isolate herself from the World and for 20 years, she refused to go out and because of that she could not attend school.
Duangjay said that she was determined to stay indoors for the rest of her life, but she was forced to come out because her parents are getting old and she needs to take over the grocery shop, so that she can provide for the family.
She said that it wasn’t easy for her at first but now she has gotten used to it, she said that because of her big hands she finds it hard to do some chores like washing, combing her hair and so many other things.
‘My hands are so heavy I can barely lift them to comb or shampoo my hair, it is very difficult. Getting dressed is also very difficult and painful.
Some doctors said the only solution was to cut off my hands if I wished to walk around freely. But I don’t want to do that’ Duangjay said.
Duangjay also said that she has tried so many times to undergo surgery but the surgery only make things worse for her, there was a time when some surgeon remove excess fat from her hands but it grow big again after few days.
She said that it was only one doctor who could find out the true nature of her sickness.
‘They removed about 700 grams of fat and blood out of my hands but after a month it just grew back.’ she said
Months later she was contacted by a doctor, from Kitasato University in Japan, who flew her to the country for MRI scans and discovered she was suffering from Macrodystrophia Lipomatosa.
Dr Eiju Uchinuma who is a plastic surgeon said: ‘her case is very rare. Both her arms are enlarged. Her arms and hands are enormous so they swell badly but it could be worse. She is the first and only person in the World who has Macrodystrophia Lipomatosa from shoulders to her fingers on both arms.”
“At the moment there is nothing we can do about it” Doctor Eiju added.
Duangjay said that it has not been easy for her but she has to survive for the sake of her family.
See more photos of Duangjay below.
